Firstly, I must apologise for not keeping this blog up to date – I have been wiped off my feet and haven’t really found the time to do anything.
I’m trying very hard to continue my studies at college three days a week, then I come back to the hospital and try, I say try as that’s all I can do to write up assignments and revise for exams whilst sat next to Deryn’s bed.
We were in the coldest room in NATO and then after about 10 days of chemotherapy, Deryn decided that he’d go and get himself a bout of pancreatitis again… I say again because he had this in December 2010. He was nil by mouth for the two weeks over Christmas and new year and dropped 2 stone!
In 2010, he was given a 1-500 chance of developing pancreatitis because of the drugs and this time round he was given a 1-1000 chance….Deryn likes to mess about with odds doesn’t he!!!!
So, here we are in our new warm room, bunked up with Arron and his mum Claire – they’re both really nice, have the same sick sense of humour (very much needed in a place like this) and Arron is almost the same age as Deryn so they get on well.
We’ve been told that the boys will be left alone now to get on with their treatment and they can put up posters, have their own duvets and get a big tv put in here for their games consoles.
At the moment though, Deryn is very ill. He’s on a lot of morphine for the pain and he’s nil by mouth again. This time they are trying it for 7 days but they are also giving TPN which is a nutrient drip that should help him keep weight on.
His bloods are dropping and they’ve stopped chemo for now so the 14 weeks has already turned in to 15!
Deryn has a bag on the end of his NG tube (yep, he got a nose tube straight away and he was none too pleased I can tell you) this bag is vacuumed and sucks out any bile that is being produced in order to give his stomach a good rest.
Hopefully he’ll start to feel better soon, he feels very hungry which apparently is a good sign but it doesn’t help him when everyone else can eat and he can smell the food…..
He’s said that as soon as he’s allowed to eat or drink, he’s going to down a load of water – I’m guessing that won’t be the best idea but goes to show how thirsty he is…he hates water!
I’m going to sign off now and try, there’s that word again, I’ll try to keep this updated more often. It’s not easy with everything else I’m also ‘trying’ to do :)
Thank you all so much for your continuing support – Deryn has 416 likes on his Facebook group – the messages help no end. Thank you.
Also a massive thank you to everyone who’s bought something from his wish list – I can’t remember everyone off the top of my head but please know that it’s helped him through some pretty crap times so far and I know he’ll have a lot more to come so thank you.
And of course, I can’t forget my amazing friend Kat Nobile in the US – she laid on a fabulous yard sale with all sorts of things, wristbands, ribbons etc and raised over $400!
She’s wonderful xxx
Yvonne chalk, another fab lady who’s made Deryn some wonderful bracelets to keep him adorned in pink and black :)
Jodie Rowlandson for bringing in a worlds supply of Pringles! :)
Erika Burnett for making Deryn trendy with some lush clothes.
Jovan Norman and the ladies from Tesco who are on a mission! :)
Deryns school and Mr rose for being so supportive.
Our family, without you – god know where we’d be now. Thank you.
And Kimberley mower – thank you :)
If I’ve forgotten anyone, I will remember later on and credit you, I believe in credit where credits due but my mind isn’t what it should be right now – it’s full of organelles, TEM microscopes and chemotherapy protocols! :)